Posted on: 17 November 2025
Hello my name is Jo
Carers Rights Day is always a good moment to pause and reflect, but this year’s theme ‘know your rights, use your rights’ really resonates. I currently work full time at West Yorkshire Integrated Care Board (ICB) while caring for my adult son, Toby, who has Down’s Syndrome and other complex medical needs. We’re also navigating the shift from children’s services to adult services. It’s a big transition, and honestly, it can feel overwhelming. There are so many moving parts different agencies, forms, assessments, appointments and all while trying to keep up with work and everyday life.
Understanding my rights as a carer has made a huge difference. Whether it’s knowing I can request flexible working, take carer’s leave, or access a carer’s assessment, having that knowledge has given me the confidence to speak up and not just for Toby but for myself too. It’s a reminder that being a carer doesn’t mean you have to carry everything alone or stay quiet about what you need.
Navigating adult services
The move to adult services has been a real eye-opener. Things that used to be familiar now come with new processes, new people and new paperwork. It’s easy to feel lost in it all. But knowing my rights has helped me stay grounded and focused. It’s given me the tools to ask questions, push for clarity, and make sure we’re getting the support we need.
I’ve had two annual carer assessments now and I’ve found them genuinely helpful. They gave me space to think about my own needs, not just Toby’s, and helped me access support that’s made a real difference. They’re not just a formality; they’re a chance to be heard and to plan ahead with someone who understands the pressures carers face.
Workplace support: a lifeline
Staying in work has been so important for me, not just financially, but for my own wellbeing. It gives me structure, purpose and a sense of identity outside of caring. I’ve been lucky to have flexible working arrangements and supportive managers who understand what it means to juggle both roles. Open conversations at work have made it possible for me to keep going without burning out. When carers know their rights, they’re more likely to ask for what they need and that can make all the difference.
One initiative I’m really proud of is the West Yorkshire Partnership’s Employer Support for Unpaid Carers programme which is being delivered by trusted carer organisations across Bradford District and Craven, Calderdale, Kirklees, Leeds and Wakefield District. The project is all about encouraging organisations to take practical steps to support unpaid carers. You can find out more and get involved by visiting the West Yorkshire Partnership website.
A shared responsibility across sectors
Carers are a vital part of our health and care system and we need to be recognised as such. Whether it’s in health, social care, voluntary organisations, or the private sector, everyone has a role to play in supporting carers. Sometimes it’s the small things such as clear communication, timely assessments, a bit of flexibility at work that make the biggest difference.
Finding perspective in a changing world
Through all the transitions, meetings, and paperwork, Toby keeps me grounded. His joy, curiosity, and unique way of seeing the world remind me what really matters. Carers Rights Day isn’t just about knowing your rights, it’s about using them to carve out space for yourself, to feel supported and to keep caring without losing who you are in the process.
Quick guide to carers rights - know your rights – use your rights
- Employee leave - employees can request up to 5 days’ leave per year for caring responsibilities, depending on the organisation this could be paid or unpaid.
- Flexible working - all employees have the right to request flexible working arrangements from day one
- Carer’s assessment - carers in England can request a Carer’s Assessment from local authorities
- Workplace support - speak openly with your manager about your caring responsibilities
- Know your options - find out what additional support your employer offers for carers, such as paid leave or wellbeing initiatives
Remember: Using your rights is not a luxury – it’s essential. Knowing them gives you the confidence to ask for support, protect your wellbeing and continue caring without burnout.
Thanks for reading
Jo